I know that this is technically not a petition. However, our Fellowship has been doing a penny harvest to raise money for The Families of SMA for the last four months.
There one family is trying their darndest to bring awareness to SMA research. If you were not lucky enough to hear about Avery and her bucket list, then I sincerely ask you to go check out the blog. It will definitely bring tears to your eyes.
One thing on the bucket list is to get on Ellen’s show to help raise awareness for SMA. So they are asking everyone to create a huge blitz by tweeting, facebooking, blogging, and emailing about Avery and her bucket list.
You can follow along with Avery on twitter, facebook, or her blog.
In the meantime, you can also help out by sending messages to Ellen to help get Avery on her show.
TWITTER – send Ellen tweets about Avery.
FACEBOOK - send Ellen messages on Facebook.
CONTACT HER SHOW - Here’s Ellen’s webpage for “Do You Know An Inspiring Person“. All you have to do is input your information, upload Avery’s photo (see below), tell Ellen Avery’s story (see below), and then click SEND.
In the TELL US YOUR STORY section you can…
WRITE YOUR OWN
OR
COPY & PASTE FROM BELOW (ADD TO THIS IF YOU’D LIKE):
Dear Ellen:
I’m writing about a 5-month old little girl named Avery who has an incurable disease called Spinal Muscular Atrophy (SMA). While SMA is the #1 genetic killer of infants & children under the age of 2, most people have never heard of it, there is no cure for it, and there’s minimal clinical research being done to find a cure for it. Avery has created a “bucket list” of things she’d like to accomplish before she dies and one of those things is to be on your show to help spread awareness about SMA to protect future children and their parents/loved ones from SMA.
Since starting her blog 3 weeks ago, she already has over 500,000 page views, has been talked about in online news articles (including MSN, and she’s been seen on FOX & CBS news stations throughout the country. Yet her #1 goal on her bucket list remains to be on your show so you can help her teach the world about SMA.
Will you please make time for Avery and help her achieve her #1 bucket list goal?
Thank you!
Also on her bucket list is a visit to the White House. So help get the word out! Bring as much awareness to this little girl and this disease as possible.
